Disability and the S2000
Joined: Mar 2001
Posts: 31,181
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From: Hertford
Originally Posted by Bassoctopus,Jul 20 2006, 07:03 PM
Interestingly enough, Graham, we are both trying to find the answer to the same question. The problem is that you are approaching a subject that is very emotive for the people it effects. I wasn't going to do this but I will explain my situation which may (or may not) give some of you a slightly different view point when thinking "What is that car doing in a disabled spot"
I have ME and have had for about 13 years now. Without going too far into my illness, it's best to think of it as having a set level of energy, once I've used that energy up I'm ####ed. If I push myself through the ####ed stage then I'm screwed up for weeks/months depending on how much I've pushed it. Just like normal people but multiply the effects and recovery time massively. So I can look and be ok up to a point but once I've used my energy I'm in trouble.
The best way of dealing with this illness is to minimise the physical stuff I don't have to do - I don't go shoping for instance (a godsend in itself
) - and to make the most out of the energy that I have got. You will therefore see why getting parked next to where I need to go is very beneficial for me.
One of the reasons I haven't ever got round to getting a badge, although my wife and GP think I should have one, is that it's about admitting defeat, I don't want to see myself as disabled, as Allan pointed out earlier in the thread. Also to some extent I don't have a badge to avoid the backlash from people who will see me and think that I am not disabled. Which is why this subject is close to the bone for me, I have in the past had to battle this on a daily basis at work.
I do regularly get too tired to drive, which is why you'll find that Amanda always comes on meets and regularly takes over the driving when I've had enough.
I have ME and have had for about 13 years now. Without going too far into my illness, it's best to think of it as having a set level of energy, once I've used that energy up I'm ####ed. If I push myself through the ####ed stage then I'm screwed up for weeks/months depending on how much I've pushed it. Just like normal people but multiply the effects and recovery time massively. So I can look and be ok up to a point but once I've used my energy I'm in trouble.
The best way of dealing with this illness is to minimise the physical stuff I don't have to do - I don't go shoping for instance (a godsend in itself
) - and to make the most out of the energy that I have got. You will therefore see why getting parked next to where I need to go is very beneficial for me.One of the reasons I haven't ever got round to getting a badge, although my wife and GP think I should have one, is that it's about admitting defeat, I don't want to see myself as disabled, as Allan pointed out earlier in the thread. Also to some extent I don't have a badge to avoid the backlash from people who will see me and think that I am not disabled. Which is why this subject is close to the bone for me, I have in the past had to battle this on a daily basis at work.
I do regularly get too tired to drive, which is why you'll find that Amanda always comes on meets and regularly takes over the driving when I've had enough.
Are they any closer to finding what triggered it or anything useful?
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Joined: Nov 2002
Posts: 16,369
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From: Tyne Valley
Not really, they're doing little to no research in this country. 
The NHS has only recently started officially recognising it as being an illness that isn't psychological.
There has been some interesting research in the US, but you can guarantee that the UK will avoid paying out on any treatments as long as they can.
The NHS has only recently started officially recognising it as being an illness that isn't psychological.
There has been some interesting research in the US, but you can guarantee that the UK will avoid paying out on any treatments as long as they can.
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Joined: Jul 2004
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From: West Coast
Originally Posted by Lurking Lawyer,Jul 20 2006, 07:24 PM
Have you had training to be so monumentally insensitive and derogatory or is it a natural gift, BB.....?
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From: West Coast
Originally Posted by Lurking Lawyer,Jul 20 2006, 07:55 PM
So, in other words, you were trolling.....
Thread Starter
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From: Edinburgh
Originally Posted by Bassoctopus,Jul 20 2006, 07:27 PM
I actually find BB's post far less offensive than the original subject TBH 
I'm simply trying to analyse a particular facet of our behaviour & assumptions that I experienced myself. If you find that offensive, then I'd suggest that's your issue, not mine.
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Joined: May 2002
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From: Cheshire
You just said you posted what you did in order to see who would be offended by the way you choose to word it! That's trolling every bit as much as seeking to bait people or wind them up.
To be perfectly honest, all it serves to do (IMO anyway) is undermine whatever validity your point might have otherwise had.
To be perfectly honest, all it serves to do (IMO anyway) is undermine whatever validity your point might have otherwise had.
Joined: Jul 2002
Posts: 29,526
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From: ...by a lake...somewhere
Disability, like most ailments in life is viewed very differently when experienced by oneself or a close member of the family.
It's very easy to talk about such things when they do not directly affect you.
I think people like Neil and what they have done for themselves is great.
I too have had my fair share of bad health - simple things like getting to work and doing a job can be very hard. When you have an illness for a week, it's no big deal, but when pain, suffering or disability goes on for months and months or years, then, you would understand the difficulties it brings.
Life, age and experience mature a persons understanding of many subjects.
It is easy for one to dismiss when one has not experienced.
It's very easy to talk about such things when they do not directly affect you.
I think people like Neil and what they have done for themselves is great.
I too have had my fair share of bad health - simple things like getting to work and doing a job can be very hard. When you have an illness for a week, it's no big deal, but when pain, suffering or disability goes on for months and months or years, then, you would understand the difficulties it brings.
Life, age and experience mature a persons understanding of many subjects.
It is easy for one to dismiss when one has not experienced.